The Experience of Uncertainty in Mothers Caring for Children at Home after Palliative Heart Surgery
Informasi
JurnalIndian Journal of Palliative Care
PenerbitScientific Scholar
Volume & EdisiVol. 29,Edisi 1
Halaman46 - 50
Tahun Publikasi2023
ISSN09731075
eISSN1998-3735
Jenis SumberScopus
Sitasi
Scopus: 2
Google Scholar: 2
PubMed: 2
Abstrak
Objectives: Palliative heart surgery is a compelling option for some children with congenital heart disease for which corrective heart surgery is not yet possible due to its complexity. As primary caregivers, mothers have the challenge of providing optimal care to their children at home post-surgery. This study aims to explore the experiences of mothers who are caring for children recovering from palliative heart surgery at home. The research applied descriptive, qualitative and phenomenology design. Material and Methods: This study was conducted in Jakarta. The participants were 15 mothers of palliative heart surgery patients from seven provinces in Indonesia; Jakarta, Aceh, Bali, North Sumatra, West Java, Central Java and Banten. Data were collected using semi-structured interviews through the WhatsApp video call application and analysed using the Colaizzi method. Results: Mothers often felt uncertain about how to provide the best care and felt that their needs for hospital services to assist them went unmet. Conclusions: This study has implications for the development of nursing services related to discharge planning for palliative heart surgery patients. ©2023 Published by Scientific Scholar on behalf of Indian Journal of Palliative Care.
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